Tuesday, August 9, 2016

August 9, 2016 - Brain's update

Well, we got some good news today in that the Hamilton Stem Cell Program has agreed to have a consultation with Brian about the stem cell transplant.  There is still no guarantee he will get it but at least they are willing to see Brian and give their opinion.  In light of that, Brian will be starting the CyBorD chemotherapy (three rounds - each round consisting of four week intervals).  Round 1 starts this Thursday.  Today we were bombarded with more information on what medications he will be on and what side effects we are to look out for and they have given us more prescriptions to help with the side effects.  Antibiotics, antivirals, steroids, it just seems to go on and on and hard to keep straight in our head.  On Thursday we meet with the pharmacist before chemo starts so he can also go over it all again. Hopefully we can keep the oral medication straight in our head on when he has to take everything.  I have already started a "drug calendar" so hopefully that will keep us on top of things.  Once we get into the routine, we will be fine, it is just the thought of it all right now.  As the old saying goes, one step, one day at a time!  

In the meantime during this three month period of chemotherapy, we will get a call from Hamilton for an appointment regarding the stem cell transplant and find out what that entails.   


Last week, since we had no medical or doctor appointments, we took a little break from things since Brian is feeling well at the moment and took a last minute get-away to Niagara-on-the-Lake.  We stayed a nice little inn-type place called Riverbend Inn.  We had a beautiful room, took a bike tour (although it was a little too hot weather-wise - we ended up cutting it short), did some shopping and had some great meals.  It was nice just doing something normal and fun for a change.  Here are a couple of pics...

Beautiful staircase going up  to the rooms

It was like living in a different era for a couple of days!




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